The Lip In The Road

You’d think that now I’m rapidly approaching my 22nd birthday, I might be grown-up and mature enough not to overlook the important things in my life – especially not something as important as my wheelchair’s battery level. Sadly, though, it would appear that I still have much to learn, as that’s exactly what I did when going to and from work on Tuesday. The chair had supposedly been on continuous charge since the previous Thursday, when I’d last been out in it, so there was no reason for me to suspect that it would be anything other than full to the brim with power when I clambered aboard in the morning. That was, of course, until I turned it on…

The display told me that I only had five bars of power – two orange, and three red. That meant I had less than half a battery left, and I knew from previous experience that that was even less than it looked. Sure enough, as soon as I’d emerged from the garage and was halfway up the road, I was already down to two red bars – and they were flashing. Trouble seemed to be imminent, but I decided to continue on my way. I knew that the chair wasn’t designed to stop immediately when the last bar vanished, so I phoned Mum to update her, and then my workplace to let them know I would probably be late. The chair had never run flat in Winchester, with all its slopes and inclines, so what could possibly go wrong in the relatively flat Minehead?

The rest of the short journey to work passed at a range of speeds, since the chair tended to get faster and slower again at various points, usually depending on what the pavement was like. Going downhill, I found that gravity definitely helped – at one stage, an old lady with a walking stick moved over to let me past, and rather embarrassingly, I was as slow approaching her as she was approaching me! When I arrived at work, I reiterated my predicament to my colleagues, pulled up to my desk, and switched the chair off, knowing that it sometimes regained power when out of use for a while. Eventually, the time came to have lunch, and in hindsight maybe I should have stayed in the office to eat it, but I wanted some fresh air. Seeing that I had clawed back some additional power, I set off in the direction of the park.

As I had anticipated, I did lose much of that as I sped down the street, but I wasn’t going very far and there was only one road to cross. I’d do that, eat, get back and switch off again so that I would be fine to go home by myself. A foolproof and flawless plan, surely? Well, I was fully convinced that all would be well – until I’d finished my lunch and had to head back across that road again. By that point, the chair was covering most of my route at little more than a crawl – while it was just about still moving, there was no real power behind it. Imagine the true fear I felt, therefore, when I dismounted the kerb and the chair crept into the road at a snail’s pace, with a car approaching in the distance.

It stopped. I carried on, hoping that the camber at the side of the road would quickly flatten out so that I would speed up. Unfortunately, that took what seemed like an eternity, so opting to continue my day in one piece, I got back to the safety of the kerb, switched myself off once again and pondered my next move. I did try crossing at least twice more (with lengthy breaks in between each attempt), but I ultimately decided to give up altogether and send out an SOS. Another two phone calls to the office and Mum led to the latter coming to my rescue a few minutes later.

Once we were home, we set about trying to get to the bottom of the issue, which was still baffling me. I immediately plugged the chair back in upon parking in the garage and, as far as I was concerned, its display wasn’t lying – it was charging. So what was the problem? With some further exploration, Mum soon discovered that, in a nutshell, the charger wasn’t quite plugged in fully. Even though the readout was telling us what we wanted it to, the juice wasn’t going in as it should – so there you go. Everything that happened on that day came from one very small but crucial oversight. I’ll have to triple-check these things from now on, and I’ll make sure I push harder when I’m plugging in too!

Mason

 

Faith Restored

On Monday afternoon, my struggle against inadequate disabled facilities continued. Keeping the recent experiences outlined in “A Long Way To Go” firmly in mind, I considered things to have hit an all-time low when I was guided to a cubicle in a local car park by a friend in my time of need. I had my RADAR key with me, so opening the door was not a problem, and although it was a touch on the heavy side, my upper body strength meant I could move it independently. When the doorway was clear, the daylight revealed a room that should have been just the right size to accommodate my wheelchair – doubts remained, however, so I only tentatively moved in. Unable to hold the door behind me any longer, I relaxed my arm, and it slammed shut with a hefty thud. It was then that I faced my biggest challenge yet, and not in negotiating the toilet. I was suddenly finding myself stuck in pitch darkness, and unable to find a light switch!

There was absolutely nothing for my eyes to adjust to, so aside from the fact that the door was behind me, and the toilet somewhere in front, I had no idea where anything else was. I had no choice but to unzip the bag strapped to the left side of my chair and fumble for my phone. I pulled it out and the screen came to life, only to illuminate the positively disgusting lavatory visitors were expected to use. It was almost full to the brim with long sheets of discoloured and soggy toilet paper, as well as the leavings of the last poor soul who struggled in there. The walls and floor weren’t much cleaner, and the sink and taps – ironically for items that exist to wash your hands – were most likely dirtier than the fingers of anyone who has just done their business. I will admit that I can’t recall what the handrails were like, or even if there were any proper ones at all, but in any case, this was a toilet I simply could not use without a light and some degree of sterilisation.

I was desperate and without relief once again. I was also naturally angry, since I was having to take yet another detour just to perform a common bodily function, but thankfully the next disabled cubicle was only a short distance away. Out came the RADAR key again, and with the help of a kind stranger – who waited and held my umbrella outside whilst I did my thing – I was in. This new toilet was not spotless either, but it did at least contain a window, so natural light was in abundance. Space was plentiful too, and upon approaching the bowl I was grateful that it was positively poo-free. Lovely. Well, it wasn’t perfect, but it would have to do. Within a couple of minutes I was done, having been able to wash my hands without touching anything thanks to an automated system. I emerged onto the pavement again, and the stranger handed me my umbrella with a smile. The kindness of ordinary folk can manifest itself in the most insignificant ways, and that was one such way – but, with my toilet ordeal now over, the stage was set for another to appear.

The time came to go home, and that meant getting on the bus. This particular bus had evidently seen better days, however, and any modern designer with a shred of common sense would surely have made the wheelchair space much bigger – not that I could access it anyway. The issue on this occasion lay not with another wheelchair or a pushchair, but with a sea of suitcases belonging to several holidaymakers. Bear in mind that the disabled space must always be given first and foremost to someone who really needs it. In this case, I was that person, but before I’d even edged onto the ramp to board the bus, the owners of the cases were complaining about having to move them. Luckily for me, the driver stood firm, insisting that I had to be allowed on and they would have to do what they could to fit me in. What followed was a series of inch-by-inch shuffles and slides as I did my best to squeeze, but even when it seemed impossible, we managed it – almost certainly defying physics in the process. This was in no small part due to the determination of the driver, who showed a great deal of patience as I lurched into my slot. Indeed, she held the bus at the stop until I was safely seated, and when I needed to get off again ten minutes later, she made a very nerve-wracking departure a whole lot easier. People like her are those I probably don’t give enough credit to when I’m moaning about others, but now is her moment and I wanted to express my thanks for her consideration here – not forgetting the umbrella-holding man either. Your contributions to my day may have been relatively small, but they have not gone unnoticed. My friends and family are there for me on a daily basis, and they should always know how valued they are, but in your own little ways, even you help restore my faith in humanity.

Mason