Live At Your Own Pace

This piece was written for the August 2022 issue of Caitlyn Raymond’s fantastic Details Magazine, which is out now – you can find out more about it by clicking here!

It all started with talk of first kisses.

“I was 16 when I had mine…”, said Caitlyn, as we discussed how we might incorporate the theme of ‘coming of age’ into this issue. Oh dear, I thought. She thinks 16 is late? I was 21! It was then that I realised it was going to be hard to relate to any of the typical teenage experiences the others were going to talk about. I often tell people that a disabled life isn’t a bad one, just a different one, and what that can mean is that it moves more slowly than everyone else’s. Admittedly, I’ve always been somewhat shy and introverted, so you could argue that that’s partly been down to choice. But there’s no doubt that I have had a sheltered upbringing, one that led me down another path, and perhaps that meant that I was never in the right places – or the right circles – for certain things.

I’ve always been lucky in that I’ve always got on pretty well with most people, and I was never really subjected to any of the bullying that some other disabled kids get at school. On the other hand, I wasn’t exactly what you’d call popular either. For a long time, I didn’t really see the few friends I had at weekends or during holidays, and I certainly wasn’t invited to any parties or other gatherings as I got older. I’d listen to the stories people would tell about getting drunk on cider in a field, or finally getting off with someone they’d been pursuing for months, or the amazing trip they’d just been on with their very best buddies, and I’d feel like those things were happening in a completely different world. Of course, at least two of them aren’t massively important, but back then they seemed huge and unattainable, and I’ve never felt less normal (whatever that is) than I did at times like that. And that was just adolescence.

Even now, in my mid-twenties, I still can’t truthfully say I really feel like an adult. Maybe it’s good to retain youthfulness, but I can’t help feeling I might have retained a little too much – and that must surely be because I missed out on many of those formative rituals that develop you to a certain extent. Whenever I’m explaining life with cerebral palsy to someone, I always emphasise how independent I am – how I get out and about in my chair, wash and dress myself, et cetera – but how independent am I really? Sometimes it feels like I should have gotten to 25 with a little more to show for those years. If I’d had more of those aforementioned experiences, maybe I’d have gone further, met more people, and been a more social creature than the generally withdrawn one I’ve come to regard myself as. But then again, I’m still only 25. As I’m continually reminded, we only get one go at this thing called life, and none of us should rush it. 

Some people pack more into ten years than others do into eighty, but that doesn’t necessarily mean that they have to. Like a lot of people, I’m often prone to scrolling through social media, seeing people who were in my class with jobs, houses, husbands and wives, and wondering why I’m not at the same point. Given my condition and the difficulties it poses, it might take me longer to obtain all of those anyway, but I still fall into the same trap almost every time. Perhaps I ought to heed a quote I saw recently, attributed to Noel Gallagher. When asked about the meaning of life in an interview, he said:

“I enjoy the trip. Wherever you’re going is where you’ll end up. Don’t worry about that. Enjoy the scenery on the way.”

Now, a rock star may not be the best person to be taking life advice from, and I certainly don’t agree with everything Noel says, but I think those words make perfect sense. Whatever happens, I should always remember to live at my own pace and never lose hope. However long it might take, I will be less boring – and perhaps a little more grown up – eventually…

Mason

Souligner!

You know when you make notes on something to refer back to later, but when you do they’ve been scribbled so hurriedly that they no longer make sense even to you? I’ve found that that’s happened rather a lot lately as I try to adjust to my new job. The notes have been growing by the day, whether I’ve been recording new conversations, methods or even interviews, but with every new scribbling has come the increased risk of confusion. Ironically, though, these may still be more of a help than a hindrance.

Back in Year 8, when I was doing French at school, I found myself doing pretty well (a few years later, I decided not to do the subject at GCSE, and my teacher was devastated after I broke the news). I could write it confidently and I wasn’t bad at speaking it either, with an increasingly accurate accent. There was, however, one small thing I couldn’t quite master doing work in my textbook – using a ruler. That wasn’t exclusive to any one subject – in every class, I thought the lines already on the page would be sufficient to keep my writing straight – but in French it seemed to be a particular problem for my teacher. With every passing week, it would slope further and further downward, and the same word would appear next to it without fail: “souligner!”

What does it mean, I hear you ask? Simple. “Underline.” It must have been there for weeks or even months on end, but I still wouldn’t make the effort to hold that ruler straight. When you have cerebral palsy, fine motor skills can be a tricky thing to master, but eventually, having seen one “souligner!” too many, I realised that particular ability was one I really needed to get on top of. Ultimately, of course, I did, and I’m willing to bet I did so much quicker than I expected to beforehand. I’ve never forgotten it, because it’s one of those tiny things that taught me never to be afraid of notes or feedback, regardless of how harsh they might seem, because at the end of the day they’re there to push you forward. That time in Year 8 taught me two things – a piece of French vocabulary and the correct way to use a ruler – and I’m keeping that in mind with every note I’m given in my new job. I’m bound to slip up mere weeks in, or even once I’m firmly established there, but what matters most is not the mistakes I make, but how I learn from them. Life is, after all, one big learning curve.

Mason

The Man In The Melee

Another Thursday means another Publishing and Social Media class, and that means another short story! Anyone who read my last post will know that I shared three examples of Twitter fiction I was particularly proud of, and after a favourable response to those – particularly in this post from Penstricken – I have decided to show you something else that I wrote this morning. Its genesis was the photo you can see above, which I took when we were asked to take a picture that we could use as the basis for a story. We could do whatever we liked with it, provided that it did not exceed 2,200 characters, the maximum number permitted in an Instagram caption. When I returned from the university library to start my piece, I did so intending to write more fiction, but I quickly found myself drawing more and more from my experience, so what you are about to read is closer to a true account. That might have something to do with the fact that I have actually been trapped in that very same aisle once or twice before! As always, I hope you enjoy what is below, and do feel free to get back to me with feedback. You are also more than welcome to formulate your own endings if you wish – I intentionally left it open for you…

The library is very busy today, and that means congestion. It’s like Black Friday for bookworms. Everyone needs this for their essay, or that for their assignment, and they all want the same thing at the same time. I have what I need – now I just want to get out of the aisle. I see a girl at the other end, avoiding the melee at a computer, and I envy her. If she finds herself having a Clint Eastwood-esque face off with a fellow student, all she needs is a gap the size of a cigarette paper to slip on by. Letting me past, on the other hand, is like meeting an articulated lorry in a narrow country lane. If you and I are facing each other in an aisle, we cannot go any further – one of us will have no choice but to retreat. Occasionally, this means that I instantly become both highly conspicuous and highly embarrassed. All I want is to go through life without being too much of an inconvenience, and here I am exactly that. I am the road block in this aisle, and people are getting impatient on either side. I am gripped by panic and my heart beats like a machine gun in my chest. I find myself unable to take action – the world becomes a blur and I have no idea what my next step will be. I shut my eyes. If I ever doubted the world was still inaccessible to the disabled, I know it is now. I am a square peg stuck in a round hole, and I have to find some way to wriggle free.

Mason